Thursday, September 4, 2008

Autism...letter to teachers

I just wanted to thank you all in advance for everything you'll be doing for and with Sophie this school year! I'm so excited that she's had a good first few days and expect the goodness to continue all year.

If you have any suggestions, I'm more than willing to listen. Your suggestion might be something I've thought about, but accidentally zoomed by without addressing or trying. (The mind of a parent of a special needs child goes 100 mph.)

Also, if you have any questions or concerns about Sophie, please let me know. All my phone numbers are below, or please email. Whatever works for you.

In lieu of filling out the forms that Mrs. Hamilton sent home, I've written a bit here about Sophie (from her perspective) for those who don't know her all that well yet!

My name is Sophie Lash. I am 9 years old...almost 10!

I live with my Mom and my sister Hannah...right across the street from South Meadows. My Dad lives near Lansing, and he comes to see me and my sister once or twice a month, but he really doesn't spend a lot of time with me. I have a Grandma who lives in Chelsea. I get off the bus at Grandma's house. I have 2 Uncles who I get to see a bunch. You will see Uncle John when my Mom goes to California (January 11-15). As much as I like school, I really like to be with Grandma, but Uncle John will help me get to school on those days. I also have an Aunt, Uncle, and 2 cousins in Kansas. I also have a Great Uncle who is 95 years old. You'll see them all on my Dynavox!

A most noticeable thing about me is that I don’t talk yet. My mom hopes that I will someday, but for now, I use pictures and the Dynavox to tell what I want. I can also get my point across in other ways. Can you imagine how hard it is to communicate without being able to talk? When I get really mad, I sometimes say Mom or No. When you least expect it, a word might just slip out.

I am very strong and fast, if I want to be. Sometimes, I move as slow as a snail.

I like to watch movies with lots of music and dancing. I like watching the Wiggles, Bear in the Big Blue House, Barney (sometimes on youtube.com). I like Kidsongs videos too. Once in a while, I like more grown-up movies like Shrek, Stuart Little, and Annie.

I like music a lot. I go to music therapy once a week with Mr. Mike in Ann Arbor. For this school year, it will be on Thursdays at 6 p.m. Did you know that people hear music with a different part of their brain than they hear talking? It’s easier for me to understand music or singing. So, sometimes when I am not in a good mood or paying attention, I listen to music, and it makes me feel better. Singing what you want to tell me gets me to understand a little better too. I love my ipod!

I like toys. I like little toys. (You might call them manipulatives.) I love my beads. If I am mad and need to calm down, please give me my beads. I like to flutter little toys or beads. Besides really liking that visual stimulation, I am the champion bead-twirler of the universe.

I like puzzles. I am really good at putting puzzles together. I like the alphabet and numbers and maps. I like the calendar.

I like any group of things that I can look at and study and then display the way that I want. My Mom says that I am an artist of installation pieces. I like to create pretty displays that take up the whole room!

I love to play in the water. In the sink, I use different cups and watch the way the light hits the water. Sometimes, I like really hot water, so please help me watch out so that I don't hurt myself or anyone else.

I like junk food. My Mom tries and tries to get me to eat healthier food, but I just don’t like the smell or the texture of that food. The somewhat healthy things I like are popcorn, rice cakes, yogurt, sunflower seeds, pumpkin seeds, nuts, corn chex and rice chex. The unhealthy things are ice cream and cookies. (Watch out...I will nab your cookies if they are left out!)

I like animals. I have a dog, named Rascal, who I tolerate. My friend Belinda has a cat. I like to kiss and pet the cat. I spent a lot of time at Belinda’s playing with other kids this summer.

Sometimes transitions can be very hard for me. Beads and music and patience help. I'm not trying to be difficult, just trying to work through things. If I am really angry, singing the alphabet song or "Itsy-Bitsy Spider" or counting to ten helps me settle down. It helps me focus on something other than my frustration. (If I take your hands and twist them in diferent directions, I am requesting your rendition of "Itsy-Bitsy Spider".)

I don't like my hair touched, but then again, sometimes I might want you to press on my head. (I tolerate the hair-combing when I absolutely have to! I'm getting better. This summer, I sat in the chair and wore the cape when I got my haircut. My Mom almost cried, and the hairdresser was so pleased!) I am way better at brushing my teeth than I used to be, but trips to the dentist are still pretty rough on me and the dentist. I like to have my arms, hands, legs, and feet rubbed. I might ask you to rub my arms.

I'm very sweet and loving and smart. I have a lot inside me that is just waiting to come out.


As you can tell I could talk forever about Sophie. In fact, I'll be on a panel in October at Siena Heights University, giving the parent's perspective on autism. I'm afraid I won't give anyone else a chance to talk.

1 comment:

Jubilee on Earth said...

Oh, I absolutely love this post! I feel like I know her very well. You did a great job with that! And I know you'll be fantastic on the panel. Sophie is very blessed to have a mom like you!!!

(Is there a patron saint of autistic kids action figure?)

:o)