Tuesday, August 12, 2008

Notes about want I want to talk about at Savvy Seminar for Autism

Mary Hellner:(class of ’88) of Chelsea, mother of two, one of whom is Autistic. She wears a button on her purse that says “ask me about Autism” so she can bring a wonderful perspective. provide a brief story, or explanation of who you are, what your connection is with Autism and what you bring to the panel discussion. At that time I would like to open it up to the audience for questions. I would ask that each of you bring at least 2-3 of your own “questions” you think would prompt discussion, in case we are looking out at a group of people who might not know just what to ask….

Initial Diagnosis = No one wanted to tell me that it was autism. Doctors didn't. Parents of autistic boy because autism varies so much), she did not think that Sophie had it. Nurse Practitioner that I've known since kindergarten or 1st grade "looked" at me and said that the Mom knows best.

Educational = IEPs...changing schools = just me with about a dozen school staff from 2 different schools. Be nice to school staff. They work with your kid. They know your kid better than stupid researchers.

Emotional = Seek help and support from anyone that you trust.

Check my blog (old and current) for anything that I've mentioned about autism.

You cannot take what others say personally. They are ignorant. Talk about Mrs. Osentoski in the parking lot.

You will not take anything that your kid does for granted.

It's a blessing. It brings your family together. It gives siblings the opportunity to learn patience, compassion, etc. Hannah is the sweetest person I have ever met. I am blessed to have a wonderful support system with my sister, brothers, and their families. I have confidence that if anything happens to me, they will care for Sophie.

See autism wherever I go...someone is on the spectrum.

When I first started working in sales, 3 of the 6 people in my aisle had kids on the spectrum.


1 comment:

Jubilee on Earth said...

Hey, there! I haven't commented in a while. Rough month, you know?

So, is this something you're doing formally? Like a panel or something? Do you really want us to ask questions?

Tell me more tomorrow!

~MJ